What a day, what a day.

First – scheduled for IVIG today.

Second – needed to get the Kia to the dealership before I went to Rex. Couldn’t get the car started, so I called for a tow. An hour later, I called the Rex to let them know I was running late. Then I called back to find out where this person is. He was supposed to be up the street. 20 minutes later I call back again. It doesn’t take that long to come down the street.

Despite the fact that I have the Kia’s hood up, the driver goes right past the house.

We finally get to the dealership and I’m on my way to Rex.

Third – Arrive at Rex only to find out my IVIG isn’t waiting for me. That was the reason I called to let them know I was going to be late, so the pharmacy would go ahead and mix the IVIG anyway. It takes an hour to mix.

I finally get hooked up and after about an hour, they turn up the volume and run the IVIG wide open.

Forth –It’s time to re-apply for aid after my treatment, Rex sent me a bill for almost $1200.00. I need to see the Financial Aid Department.

Fifth – In the Financial Aid Department and I find out I’m not eligible for the same amount of aid as I received last year. Excuse me?? My IVIG from last July until now cost over $250,000.00. I find out I qualify for 60% in aid, which is better than nothing. I should also quality for the “chronic / catastrophic” category as well. I mean the first word of my disease is “Chronic”. If so, that should give me a few more percentage points. If so, my monthly Rex invoice will be about $300.00. The woman then wanted to know if I needed to set up a payment plan. Hmm, let’s see - $300.00 per month for the next however many months? Duh – I think so.

Sixth – I finally get picked up from Rex and go get my car. It’s ready. The mechanic tells me that he’s had problems with the battery because it won’t hold a charge. Excuse me?? Does anybody listen to me?? I told him that when I dropped the car off this morning.

Seventh – I’m finally home.

I’m nauseous, have a headache and my arm hurts.