I can’t do this alone any longer.
I’ve taken my script for WELLBUTRIN XL and had it filled.
We shall see how things go from here.
Tuesday, August 29, 2006
Monday, August 28, 2006
What a day, what a day.
First – scheduled for IVIG today.
Second – needed to get the Kia to the dealership before I went to Rex. Couldn’t get the car started, so I called for a tow. An hour later, I called the Rex to let them know I was running late. Then I called back to find out where this person is. He was supposed to be up the street. 20 minutes later I call back again. It doesn’t take that long to come down the street.
Despite the fact that I have the Kia’s hood up, the driver goes right past the house.
We finally get to the dealership and I’m on my way to Rex.
Third – Arrive at Rex only to find out my IVIG isn’t waiting for me. That was the reason I called to let them know I was going to be late, so the pharmacy would go ahead and mix the IVIG anyway. It takes an hour to mix.
I finally get hooked up and after about an hour, they turn up the volume and run the IVIG wide open.
Forth –It’s time to re-apply for aid after my treatment, Rex sent me a bill for almost $1200.00. I need to see the Financial Aid Department.
Fifth – In the Financial Aid Department and I find out I’m not eligible for the same amount of aid as I received last year. Excuse me?? My IVIG from last July until now cost over $250,000.00. I find out I qualify for 60% in aid, which is better than nothing. I should also quality for the “chronic / catastrophic” category as well. I mean the first word of my disease is “Chronic”. If so, that should give me a few more percentage points. If so, my monthly Rex invoice will be about $300.00. The woman then wanted to know if I needed to set up a payment plan. Hmm, let’s see - $300.00 per month for the next however many months? Duh – I think so.
Sixth – I finally get picked up from Rex and go get my car. It’s ready. The mechanic tells me that he’s had problems with the battery because it won’t hold a charge. Excuse me?? Does anybody listen to me?? I told him that when I dropped the car off this morning.
Seventh – I’m finally home.
I’m nauseous, have a headache and my arm hurts.
First – scheduled for IVIG today.
Second – needed to get the Kia to the dealership before I went to Rex. Couldn’t get the car started, so I called for a tow. An hour later, I called the Rex to let them know I was running late. Then I called back to find out where this person is. He was supposed to be up the street. 20 minutes later I call back again. It doesn’t take that long to come down the street.
Despite the fact that I have the Kia’s hood up, the driver goes right past the house.
We finally get to the dealership and I’m on my way to Rex.
Third – Arrive at Rex only to find out my IVIG isn’t waiting for me. That was the reason I called to let them know I was going to be late, so the pharmacy would go ahead and mix the IVIG anyway. It takes an hour to mix.
I finally get hooked up and after about an hour, they turn up the volume and run the IVIG wide open.
Forth –It’s time to re-apply for aid after my treatment, Rex sent me a bill for almost $1200.00. I need to see the Financial Aid Department.
Fifth – In the Financial Aid Department and I find out I’m not eligible for the same amount of aid as I received last year. Excuse me?? My IVIG from last July until now cost over $250,000.00. I find out I qualify for 60% in aid, which is better than nothing. I should also quality for the “chronic / catastrophic” category as well. I mean the first word of my disease is “Chronic”. If so, that should give me a few more percentage points. If so, my monthly Rex invoice will be about $300.00. The woman then wanted to know if I needed to set up a payment plan. Hmm, let’s see - $300.00 per month for the next however many months? Duh – I think so.
Sixth – I finally get picked up from Rex and go get my car. It’s ready. The mechanic tells me that he’s had problems with the battery because it won’t hold a charge. Excuse me?? Does anybody listen to me?? I told him that when I dropped the car off this morning.
Seventh – I’m finally home.
I’m nauseous, have a headache and my arm hurts.
Tuesday, August 22, 2006
Saturday, August 19, 2006
I did it! I took my cousins to Six Flags America on Saturday.
I haven’t been to an amusement park in over two years. I was able to converse the park, get in and out of the rides without any problems and just hang out and have a good time.
The only exception was when we arrived in Hurricane Harbor; all of the attractions required a person to climb steps, and there were just too many steps for me to continuously climb. For the remainder of our time in the “Harbor”, if they wanted to go on an attraction, I just waited for them at the pool when they came down. I went on one of them, but that was it for me.
The only other issue I had was my blood sugar bottomed out. I knew I was going to be more active than normal, so I made sure to eat and keep hydrated, but right before we were leaving Hurricane Harbor, I felt it coming on. I found the First-Aid stand in Hurricane Harbor, but they didn’t have a meter. So I went to the official First-Aid station. They didn’t have a meter either. What??
My cousin walks in as the Medic is explaining to me about Maryland laws and why they don’t/not allowed to have a meter for someone to check their blood sugars. Oh Please. In the meantime, the Medic has Glucose Gel that he could give me. Don’t think so – Nasty stuff. Somebody just go get me a candy bar.
All-in-all, we had fun and a good time was had by everyone.
We’ve already bought our Fright Fest “Twickets” for sometime in October.
You know who to give the Praises to!!
I haven’t been to an amusement park in over two years. I was able to converse the park, get in and out of the rides without any problems and just hang out and have a good time.
The only exception was when we arrived in Hurricane Harbor; all of the attractions required a person to climb steps, and there were just too many steps for me to continuously climb. For the remainder of our time in the “Harbor”, if they wanted to go on an attraction, I just waited for them at the pool when they came down. I went on one of them, but that was it for me.
The only other issue I had was my blood sugar bottomed out. I knew I was going to be more active than normal, so I made sure to eat and keep hydrated, but right before we were leaving Hurricane Harbor, I felt it coming on. I found the First-Aid stand in Hurricane Harbor, but they didn’t have a meter. So I went to the official First-Aid station. They didn’t have a meter either. What??
My cousin walks in as the Medic is explaining to me about Maryland laws and why they don’t/not allowed to have a meter for someone to check their blood sugars. Oh Please. In the meantime, the Medic has Glucose Gel that he could give me. Don’t think so – Nasty stuff. Somebody just go get me a candy bar.
All-in-all, we had fun and a good time was had by everyone.
We’ve already bought our Fright Fest “Twickets” for sometime in October.
You know who to give the Praises to!!
Sunday, August 13, 2006
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