To quote “Florida”
Damn, Damn, Damn!
My legs are hurting again. So much so, that my co-workers have made comments about it.
I just saw Nancy on Tuesday and everything was so good!
Why now?
When this happens to me these days, I do a quick “mental check” about all the things I’ve done over the past twenty-four (24) hours to see if there is ANYTHING to give me a reason to feel the way I do.
Nothing.
What I’m grasping for now, is “just maybe” my anemia is worse and the lack of iron is causing the muscle aches.
That’s my story and I’m sticking to it.
I’ve also changed my diet to basically seafood and green salads.
Muscles, Clams, Oysters and Shrimp are all high in Iron and I can and do eat them all. And more importantly, I don’t have to FRY them when I cook them.
I’ve also starting taking an iron supplement as well.
I’ve got thirty days (30) to get my iron count back up.
Thursday, September 28, 2006
Tuesday, September 26, 2006
I’m so excited!!
Went to see Dr. Schecter today and nothing but good news!
Reflexes are going to do better each time and I’m going through the test very well. Still having issues with the weight, but at least I’ve finally stopped Gaining and finally starting to Stabilize. It’s About time. I’ve been working on losing weight and it finally starting to pay off.
We are moving my IVIG treatments out to every Six Weeks and I don’t need to see her every month. My next appointment with her is three months from now!
Can the Choir say “AMEN”!
Went to see Dr. Schecter today and nothing but good news!
Reflexes are going to do better each time and I’m going through the test very well. Still having issues with the weight, but at least I’ve finally stopped Gaining and finally starting to Stabilize. It’s About time. I’ve been working on losing weight and it finally starting to pay off.
We are moving my IVIG treatments out to every Six Weeks and I don’t need to see her every month. My next appointment with her is three months from now!
Can the Choir say “AMEN”!
Monday, September 25, 2006
Today is IVIG day.
I’ve also starting take the PrevPac script. One of these antibiotics is leaving a Serious nasty taste in my mouth which doesn’t go welll with the other side effects of nausea.
This script is 5 pills at one time, twice a day. Add my regular meds to this and I’m back to taking 11 pills a day.
Reminds me of what I went through last year.
It’s going to be a long two weeks.
I’ve also starting take the PrevPac script. One of these antibiotics is leaving a Serious nasty taste in my mouth which doesn’t go welll with the other side effects of nausea.
This script is 5 pills at one time, twice a day. Add my regular meds to this and I’m back to taking 11 pills a day.
Reminds me of what I went through last year.
It’s going to be a long two weeks.
Friday, September 22, 2006
The test results are in and it’s official: I have an ulcer, or rather Helicobacter Pylori (nasty bacteria which causes ulcers).
Fortunately, it has been caught in the very early stages and will be treated with PrevPac© for the next fourteen days (14 days).
Does this every expensive script come in a generic? - Of course not.
Then I also have to have an x-ray of my Small Bowel. This in itself wouldn’t be so bad, expect I have to drink a solution of Barium first.
Ugh – I’d rather drink Geritol.
After all of this has been done and all the tests are read and evaluated, I have a follow-up appointment at the end of the month with Karen at the Endo Clinic.
Fortunately, it has been caught in the very early stages and will be treated with PrevPac© for the next fourteen days (14 days).
Does this every expensive script come in a generic? - Of course not.
Then I also have to have an x-ray of my Small Bowel. This in itself wouldn’t be so bad, expect I have to drink a solution of Barium first.
Ugh – I’d rather drink Geritol.
After all of this has been done and all the tests are read and evaluated, I have a follow-up appointment at the end of the month with Karen at the Endo Clinic.
Thursday, September 21, 2006
Wednesday, September 20, 2006
Another step in the right direction.
Signed up for a “Deep Water Exercise” class at the public pool! I was taking this class before CIDP and now I’m strong enough to begin again.
Also, I may be able to get an exchange on my pool ticket from last year. As I was speaking to the woman at the desk regarding the exercises and whether or not I was strong enough to take the class, I happened to mention that due to my illness, I wasn’t able to use all of my tickets from last year. She then gave me the name and address to the pool manager and encouraged me to contact her with my story and perhaps I’ll be able to redeem those unused tickets. It’s worth a try.
Signed up for a “Deep Water Exercise” class at the public pool! I was taking this class before CIDP and now I’m strong enough to begin again.
Also, I may be able to get an exchange on my pool ticket from last year. As I was speaking to the woman at the desk regarding the exercises and whether or not I was strong enough to take the class, I happened to mention that due to my illness, I wasn’t able to use all of my tickets from last year. She then gave me the name and address to the pool manager and encouraged me to contact her with my story and perhaps I’ll be able to redeem those unused tickets. It’s worth a try.
Monday, September 18, 2006
I get to Eat today!!
Today was “procedure” day. Up early this morning for my Endoscopy and Colonoscopy. According to Karen Saville and Cheryl Proctor, the reason for needing the exams at this time is because I have “Iron deficiency anemia” which has gotten worse.
Once again, I realize I have no tolerance for anesthesia. I saw the doctor inject something into the I.V., I remember tasting something funny and the ceiling moving. After that….
Strange dreams… Felt something in my throat, a cool breeze on my backside.
Next thing I knew someone was calling my name and asking me if I wanted something to drink.
We timed it just right. Once I was checked out and everything was declared okay by the nurse, Mother arrives in the bay followed by Dad.
Mother actually had to sign me out before I could leave.
They did however give me a “mini” report (with pictures) to take home. For the life of me, I don’t know why my internal pictures are better than my external ones.
Endoscopy: Hiatal hernia with mildly irregular z-line with islands within 1cm-s/p four quadrant biopsies. Mild nodular erosive antritis-biopsied. For all this, they gave me a prescription for Nexium.
Colonoscopy: Internal hemorrhoids and polyp removed.
The complete results are not in yet. I have to wait at least seven (7) days for I get the results of the biopsy back and then a possible follow-up with Karen.
Today was “procedure” day. Up early this morning for my Endoscopy and Colonoscopy. According to Karen Saville and Cheryl Proctor, the reason for needing the exams at this time is because I have “Iron deficiency anemia” which has gotten worse.
Once again, I realize I have no tolerance for anesthesia. I saw the doctor inject something into the I.V., I remember tasting something funny and the ceiling moving. After that….
Strange dreams… Felt something in my throat, a cool breeze on my backside.
Next thing I knew someone was calling my name and asking me if I wanted something to drink.
We timed it just right. Once I was checked out and everything was declared okay by the nurse, Mother arrives in the bay followed by Dad.
Mother actually had to sign me out before I could leave.
They did however give me a “mini” report (with pictures) to take home. For the life of me, I don’t know why my internal pictures are better than my external ones.
Endoscopy: Hiatal hernia with mildly irregular z-line with islands within 1cm-s/p four quadrant biopsies. Mild nodular erosive antritis-biopsied. For all this, they gave me a prescription for Nexium.
Colonoscopy: Internal hemorrhoids and polyp removed.
The complete results are not in yet. I have to wait at least seven (7) days for I get the results of the biopsy back and then a possible follow-up with Karen.
Friday, September 15, 2006
It’s a conspiracy: just when I need to increase my iron levels, there is a recall on spinach! Geritol is just too nasty for me.
I could buy the frozen kind, but I like the raw in my salads and slightly wilted with butter and just a hint of garlic. Yum
All though North Carolina isn’t one of the states listed (yet) and I don’t buy the organic spinach (too expensive), I’m not going to take the chance.
I could buy the frozen kind, but I like the raw in my salads and slightly wilted with butter and just a hint of garlic. Yum
All though North Carolina isn’t one of the states listed (yet) and I don’t buy the organic spinach (too expensive), I’m not going to take the chance.
Geritol = Nasty
It’s the quickest way to get my iron count back up. Something needs to turn around, because I’m NOT even trying to go down the blood transfusing route.
What I don’t understand is this; Geritol has been around FOREVER (since the 1800’s), and one would think that after all this decades (centuries), the makers would find a way to make this stuff taste better.
Ugh
It’s the quickest way to get my iron count back up. Something needs to turn around, because I’m NOT even trying to go down the blood transfusing route.
What I don’t understand is this; Geritol has been around FOREVER (since the 1800’s), and one would think that after all this decades (centuries), the makers would find a way to make this stuff taste better.
Ugh
Wednesday, September 13, 2006
Going back to "Vamp style"
Got my test results back from Monday's bloodwork.
I'm going in the Opposite direction! My Iron count has gotten worse.
It went from 10.5 to 9.9 Normal is from 12.0 - 15.0
Karen (yes, another doctor) tells me that if I go any lower, she's going to have me transfused.
If people thought I was crazy asking to donate blood after finding out IVIG comes from blood, just wait.
If I can't get my iron levels back up before next month I'm really going to be asking people "what's your blood type" right after they greet me.
Got my test results back from Monday's bloodwork.
I'm going in the Opposite direction! My Iron count has gotten worse.
It went from 10.5 to 9.9 Normal is from 12.0 - 15.0
Karen (yes, another doctor) tells me that if I go any lower, she's going to have me transfused.
If people thought I was crazy asking to donate blood after finding out IVIG comes from blood, just wait.
If I can't get my iron levels back up before next month I'm really going to be asking people "what's your blood type" right after they greet me.
Monday, September 11, 2006
Monday, September 04, 2006
Labor Day 2005 – Labor (verb) 1. Work hard 2. Struggle to do something 3. Move with difficulty. i.e. not able to bathe or take a shower by myself, not able to go up stair without help, having to use a walker.
Labor Day 2006 – Labor (noun) 1. Physical work. ie. doing my own laundry, then cooking chicken, collards, saffron rice with onions, red peppers and shrimp; baking cornbread and carrot cake.
Labor Day 2006 – Labor (noun) 1. Physical work. ie. doing my own laundry, then cooking chicken, collards, saffron rice with onions, red peppers and shrimp; baking cornbread and carrot cake.
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