My World Of Chronic Inflammatory Demyelinating Polyneuropathy
Brief look into my life since having Chronic Inflammatory Demyelinating Polyneuropathy or CIDP, a rare neurological disorder that affects about 1 in every 100,000 persons (US figures), which means not many people know much about it, including most doctors.
Saturday, January 01, 2011
Happy New Year !!
Another year and I'm doing WELL !
Saturday, July 17, 2010
I am too tired!! Long day, but fun packed!!
Sunday, July 04, 2010
5 years.
My, how time flies.
5 years ago, I was just beginning my journey.
5 years later, I'm still traveling. I've come a long way.
I've learned a lot on this road.
Some lessons were easy to learn, other lessons were harder.
I'm still here. I'm still learning. I'm still growing.
I am Blessed.
Friday, January 01, 2010
Happy New Year!!
Thursday, January 01, 2009
New Years Wishes
May God Bless You!!
Tuesday, January 01, 2008
My New Year’s Wishes:
May you find your own place of Peace.
May you live your own sense of Joy.
May you Love yourself, even if no one else does.
May you be as blessed as I am.
May God Bless You!
Saturday, December 29, 2007
It’s my last night in the city, and I’ve traveled from one end of the strip to the other more than once. I’ve also WALKED a good part of it as well.
December 2004-toes where numb and tingling. January 2005, numbness spread from a few toes to the rest of my feet and it became painful for me to walk. also the soles of my feet turned purple. February 2005-contacted an Endocrinologist, who referred me to a neurologist. By the time I saw a neurologist in March 2005, my range of motion was affected. I was no longer able to fully bend down, lift my legs, cross my legs. Nor could I fully lift my arms. My balance was off, (I walked like I was drunk all the time), I’d already fallen a few times, the numbness, tingling and pain had spread to my legs, arms, hands and fingers. The nighttime leg pains are the worst. On a scale of 1-10, they run anywhere from 7-10. After a full neurological exam, I was sent for a Nerve Conduction Test to determine the extent of the nerve damage and to also determine a possible cause for the damage itself. The diagnosis was an autoimmune disorder by the name of Chronic Inflammatory Demyelinating Polyneuropathy. The long name basically means that the protective coating surrounding a persons nerve has/is deteriorated. My Treatments are IVIG which are EXTREMELY expensive ($14,000+ per dose) and hard to get.
