It's 4.15 am and I'm up like clockwork. Big surprise huh? I went to bed at 1 am, so I've only had about 3 hours of sleep. I'm in some sort of "major nap mode" when it comes to sleeping or rather not sleeping at night.

It's 5.00 am I'm going back to bed and I'm going to just lay there until I go back to sleep. It's 8 am and I'm up for the day.

I noticed when I laid back down yesterday morning, it was about 8.00 am and I didn't sleep two hours and I was up for the entire day.

My legs are heavy this morning and my knees are bothering me. Still fighting this cold.

Dr. Garrett called to confirm the lab test results from my Kidneys. Oh Joy

Up @ 4.15 am but I went to bed at BEFORE 10.30 pm. No kidding! Lights out, TV off before 10.30. Haven't done that in a while.

Feel okay this morning, the cold is still with us. Will do another round of cold medications today.

My legs are still bothering me and I have PT today. Bummer. The way I feel right now, I'd rather stay home and take care of this cold before it gets out of hand. I've already got "the cough" I can't seem to shake.

I need to put some air in the front tires of my Escort, but the way my legs feel today, I'm not sure if I'm going to make driving that car.

I'd better set my alarm clock, because I know I'm going back to bed later this morning.

I went to bed about midnight and I'm up at 4.15am. Why? Who knows. Guess I'll do the laundry.

I'll stay up long enough to eat breakfast and take the dog out. I need to keep him on some sort of schedule. Actually, I don't know why I even bother.

My legs are hurting this morning.

Now I'm coming down with a cold. The last thing I need is to get sick.

Up at 6am Slept okay last night

I'm supposed to get my IVIG today.

Kaye from Rex treatment called me yesterday while I was out. I wonder what is going on. When we last spoke, everything was okay except for the fact that they were out of Polygam and I needed to get another brand of IVIG and take some kind of test to see if I was Iga deficient (whatever that means).

Okay, it turns out that I'm NOT allergic to Octagam after all. After all this time of being told that I was!

Kaye ran a small "test vial" of Octagam to see if I would tolerate it and I did. Now we are waiting to see about the Iga thing.

Happy Birthday Baby Bro!

Up at 5.15 am

Legs gave me problems all night, still heavy and knees hurt. Was hoping for better results today.

Blood sugar is too high this morning (411).

Will see Mental Health today and the Nephrologist (Kidney Doctor).

I'll go by the job and pick up my very overdue Service Award package.

Some GOOD news for a change! While Dr. Garrett (the Nephrologist) was doing his exam, he did a reflex exam on the inside of my elbows and they MOVED! I actually have reflexes again in my arms!!! First time since last December!!

I drove the 5 speed today.

Slept until 6.30 am this morning.

Having problems with my legs, they are very heavy and they hurt. I hope I'm not having another set back.

The "shakes" are still with us. I am so thankful for the GBS/CIDP website. Without it, I don't know where I'd be when trying to figure out what is going on with this disease. The discussion forum is a wealth of information for people like me.

6.19pm
Been resting most of the day.

My legs are still heavy and hurt, especially around the knees and it's getting harder for me to walk.

Up before 6am

Slept okay last night didn't have too many problems with going to the bathroom last night.

Took Mister to the Dog Park today. This is the second time we’ve been back in a very long time. I know he misses it, but what can I do?

Lunch time blood sugar dropped below 70! What gives with my blood sugar these days? Good thing I've got this pump. I'll learn how to use it next week.

For some reason, I started to nod out and needed a nap today. It may have been related to my blood sugars.

I haven't heard from Austin all week long. Interesting thing considering the fact he keeps telling me that he loves me.

Slept until 7.30 am!! WOW

Wonder if it was because I needed to take Bextra in the middle of the night because of the pain.
This is the latest I've slept in a very long time.

Legs are heavy this morning and knees hurt again.

I noticed I'm getting better at waling to the bathroom without lights on at night and not having balance issues.

The "shakes" (internal as well) are getting worse.

Up at 5.15 am.

As early as I'm getting up now (without an alarm clock), the day I need to go to work, I won't be able to get up at all.

Still having some problems with balance and control.

Still having problems with "shakes". Need to research GBS/CIDP site.

PT @ Wake Med today- worked out on the weight machines.

Drove my stick today!! First time in a LONG while.

Up at 4.15am and wide-awake. Maybe I'll go back to sleep after being online for awhile.

No such luck. I'm on my way to see Cheryl.

Walked Mister today, legs feel okay but knees hurt.

Mister licked my toes. I could actually feel the wetness and warmth on my toes, but not on my legs.

Once again up before 6am

Got up twice past midnight to go to bathroom.

Still able to lift leg to get into/onto bed. Making progress in leg strength.

Fasting blood sugars are back in the 300's.

Reduction in leg swelling seems to have stopped. If so, I'm in trouble. Edema is still very present.

Up at 5.45am.

Didn't get up much last night to go to the bathroom.

I was able to lift up my leg to get into/onto the new bed. Yea!!

Will see Mental Health today.

PT at Wake Med

Once again up before 6am.

Swelling in my legs is still going down, but feet remain swollen.

I can almost wear sneakers again.

I stood on my tip toes for a quick second!!

Austin is leaving today.

I actually walked Mister without my walker tonight.

Up early this morning.

Mister and I are going out this morning.

My legs seem to be getting better, the calves are better defined and I can walk around the house without my walker.

Austin is still here.

Going to Rex for IVIG today.

Kaye at the Cancer Center tells me that the supply of Polygam is out and that they need to find another brand for me.

Here we go again. The last time we switched brands, I broke out.

Up this am before 6am. Still waking up about every two hours to go to the bathroom.

Took Mister for a walk this morning. Legs felt good.

I had a phone appointment with Social Security today at 2.00pm. Nobody called.

The phone rang at 4.53pm. I answered it, and the person on the other end hung up.

Long day and I'm wiped out. Trying to stay up until 10pm to take Lantus.

Austin is here tonight.

I don't know what his issues are, but I feel that he can put them on hold until I get some sleep. Don't wake me up to talk, discuss, any topic with me in the middle of the night.

Once again up early. I'm up at 5.20 am. I stayed up all day w/o nap. I'm going to try and go to bed early, or I should say before midnight.

Didn't sleep well last night. Up and down most of the night. Finally up at 4.45am until about 10.30 - 11am.

PT at Wake today. First time in a long while. Not bad. Good thing I was exercising while I was in Baltimore.

Back on the Topamax- 25mg nightly, will increase each night until reach 100mg's.

Blood sugars are back up to 300's. What gives?

Meeting with Mental health today. We will have a lot to discuss, I've been out to town for 10 days.

Meeting with Dr. Schecter today. Need to ask her about getting IVIG at home or after hours, or on the weekends to deal with this issue from my job.

Meeting with the Kidney doctor today. Let’s see what's up with this.

Wow! I've been up all day without a nap.

Driving back to Raleigh today. I'll be driving back alone

Dad's family reunion is today.

Got up twice last night. Slept from 2am-6am without getting up at all. Yea!!

I'm at my max on the Edema dosage. The swelling in my legs continues to go down, but still not results in my feet.

Blood sugar is 389. Somewhat depressed/stressed last night - guess I'm still upset from my phone calls from yesterday.

Called Sonia today - I need to get some type of documentation regarding the company not being able to let me work part time and the reason why.

Got up twice last night - still slept better, didn't wake up until Virgie's alarm went off and didn't get up until 6am.

Blood sugar 288. Had the munchies last night.

Got a phone call from the company STD insurance company telling me I can't go back to work next Tuesday. Reason: "company can't accommodate 20 hr work week schedule".

According to Janice, the company has the right to keep me out on STD (and then LTD) until I can work a 40 hr work week schedule.

I don't understand this. My supervisor and I have already agreed on a 20hr schedule, the hours being from 9am - 1pm, Monday thru Friday.

Besides, the company has "accommodated" other people’s schedules in the past. I know this for a fact.

I'm the one who input the information into the records.

Slept better last night and didn't get up as much.

I actually used the pads and didn't get up except to change them and go back to sleep. No walking to and from the bathroom.

Legs are beginning to look better in the mornings. My feet are still extremely swollen.

We may go out today, but not sure where.

Mom, Dad and I went to Sam’s. I'm walking a little better despite the pain in my legs and knees.

Up at 4am after bathroom runs every 2hrs.

I'll doze/sleep later today as well. Dozed until about 6am. Blood Sugar 296.

Would like to get out today. Tired of being in the house. If nothing more than going to Wal-Mart.

Mother and I went to K-Mart and I had a good walk. It hurt because I hadn't walked in a while.

We left K-mart to get some Steakfish for lunch and I walked to the Superking, which is about a half a block from K-mart.

When we got back to Virgie's house, I managed to get up her back steps alone. I'm not able to actually bend or rather "step" up, but I manage by pulling my legs up as I pull on the rails with my arms.

Whatever works.

Went to bed at 10pm, up at 12.45am, up again at 2.00am, up again at 3.30am up again at 5.00am.

I'll be glad when I can sleep without having to get up and pee every two hours.

Hopefully this will happen when the Edema is gone.

Getting up at this rate, I'll spend most of the day resting, reading etc. Legs are heavy this morning, but not really painful.

Feeling dizzy, lightheaded. Feet are tingling - from toes to back of foot.

I did nothing but doze all day.

Up at 4.45am

Resting up for Kim and Sean's cookout today.

Went to cookout and had a very nice time.

Kim and Seans house is HUGE!! It is definitely a "work in progress", and something I would enjoy working on room by room.

My family is funny; they will use whatever is handy when they need to. Example, my walker has a basket on it, and you guessed it, it came in handy when "other" people needed to use it.

Still in Baltimore

Up at 5.00 am. Blood Sugar in 300's. Depressed last night sought comfort in chocolate.

Leg swelling seems to be going down somewhat. Between sleeping with my legs up and going to the bathroom all day and night, they aren't so tight around my knees this morning.

Stayed upstairs most of the day. Didn't go downstairs until around 5.30 pm. Came back upstairs about 10.15pm.

Resting up for the cookout tomorrow.

Feet have started to tingle, mostly around the toes.

Took Topamax and an Amitriptyln last night and was up at 5.30 am.

Started new Blood Pressure Med this morning. Peeing all day!! Hopefully the swelling in my legs will go down. This Edema really sucks!

Cheryl called me in Baltimore this morning - may have problems with Kidneys, I need to see a Kidney doctor. I forget the technical name for them. She also told me that I will be getting an insulin pump.

I'm having issues with these stairs.

Going to Baltimore today and I'm driving.

Drove up all the way! Legs do get heavy when driving a long distance. Mom and I needed to stop four times on the way up here.

By 8pm legs are extremely heavy and swollen & arms are feeling heavy as well. Maybe extra exhaustion from being up early today and the drive and then going to Nana's birthday party tonight as well.