Teresa from Wake called. It appears that even though I have an exception from UHC to be seen at Wake. UHC won’t verify that they will PAY for the MRI as In-Network. Excuse me?? That was the whole point of getting the exception.

Without UHC verifying payment, I could get stuck with the bill as an Out-of-Network expense. The MRI is over $2,000.

The math would be something like this: $2000 for the MRI (plus the office visit), minus the $500 deductible, then UHC would take 65% of the cost of the MRI and I would be left with the remainder.

I’m glad she called. There is no way I’m paying for this.

I called Dr. Schecter’s office to let them know this test wouldn’t be done either.

I was SUPPOSED to have my MRI tonight.

I say supposed to – I wasn’t able to fit into the machine. Well that’s not accurate. I could fit into the machine, but with my arms crossed in front of me. Even this way, my arms still touched the sides. There was no way I could stay still for 25 minutes (in that closed space) with out moving.

I didn’t understand what the problem was, I’ve had an MRI before and it was never this tight. The nurse asked me where I’d had one before, and I told her “across the street from Rex”. She then informed me that the machine there was a Semians and the one at the hospital is a Phillips. Apparently, MRI machines are like shoes, different manufactures have slight differences in sizes. One size does not fit all.

The machines made by Semians are larger.

Let’s hope so.

I’m in love and I’m in heaven. I’m at Aunties house tonight and I’m in her Jacuzzi.

I’ll sleep real good tonight.

Denise from Dr. Schecter’s office contacted me. I need to have an MRI done.

Well at least I don’t have to take time off from work. Rex will do them after “regular” hours. Tuesday, May 29th is when I’ll have mine done.

I feel like a pin cushion. I had my appointment with Dr. Schector today.
As I started explaining to her how weak my left side is, she went straight to Stroke.

Once we cleared that up. Started the basic test, then she did another nerve conduction and this time she used the NEEDLES. OUCH!!!

After I’d finished seeing her, I went and checked in with Cheryl. I don’t know what happened with them today. I waited in the lobby for half an hour, and then waited in the back even longer before Cheryl came in. Once I got her caught up, I asked about coming off this pump AGAIN. Doesn’t seem like it’s going to happen this year.

Damn.

Just before I was leaving, she sent me for labs. Good thing I gave up that specimen when I went to the bathroom while waiting for her to get to me.


The good news is . . . .I’ve lost another three (3) pounds!!

I’ve taken my muscle relaxant this morning. I won’t get much done today.

Some good news – the results of my Pap are in. Everything is normal. About time something came back as “normal”.

But what is this? Need to have a follow –up visit? Now what??

You know how you feel when you see the relatives (or friends) that show up unexpectedly and don’t know when to leave pulling up in your driveway? Dealing with parts of this disease can leave you with “those kinds” of feelings.

The Edema is back.

Shows up right before I have two doctor’s appointments.

My LFS Foster Care meeting was today. Because tomorrow’s Mother’s Day, LFS paid for our breakfast. After the meeting, the foster mothers received cards and small gifts.

It stopped raining long enough for the park to finally have their pool party today. I personally think it’s still too cold to get into an outdoor pool, but kids don’t seem to mind.

Even though I have the Handicap Parking decal, I don’t use it that often when I’m out and about. I’ve been walking rather well, so I park the car wherever and get that “extra” bit of exercise in at the same time.

I used it this morning. I used my cane as well.

Last night was a bit rough.

Even though I’d taken a hot bath and a Skelaxin before I went to bed, my legs started throbbing during the night, and are very tight this morning.

On the 1 – 10 scale, I’m at a solid 7 and I can’t take anything to really put a dent in the pain because I’m working today.

I’ve moved up my next appointment with Dr. Schecter. I’ll see her on the 21st.

I’ve checked my log and I’m taking Skelaxin more often than I realized or want to. This has become more than just “managing pain on occasions”, it’s becoming a habit and I’m still in pain.

Time to find out why.

We had a fire drill at work today. Actually, the building was testing the fire alarms again, and Craig Davis didn’t’ tell send the email out in time to notify the building.

Because they had been testing the alarms earlier this week, it took us a while before we evacuated the building.

It was a slow walk down five flights of stairs.

The Raleigh, NC CIDP / GBS Walk-A-Thon was today.

Even though only a few of us turned out because of the weather, the walk turned out well enough, and we had a picnic afterwards. There were about 30 people at the park, and we raised over $2,200. Not bad so a small chapter.

Hopefully, more money will be sent by the end of the month.

Then Mister and I went to the dog park afterwards.