I’m seriously considering going back on the Amitriplyn – these muscle aches are getting worse.

After all this time working to regain the strength I lost when the CIDP was running rampant, I now have these muscle aches to contend with. I’ve cut back on walking Mister from three times a day to twice a day because my legs hurt. And some evenings, we don’t make it far from the front yard.

I refuse to lose the ground I’ve gained.

Okay – Good news is that my latest blood test came back “normal” so I can start taking Zocor again. The bad news is we don’t know why I keep having leg pains since it’s not an adverse side effect from the Zocor.

Cheryl and I are playing “tag” with appointment dates and times.

Here we go again.

I seem to be in yet another perpetual state of swollenness, and I don’t have any idea how long this “spell” will last.

Yet, I can't really be too upset. This time last year I was in Rex Hospital for a week getting my first of many IVIG infusions; thankfully, I haven't had a reason to be re-admitted.

I've reached another anniversay date.

Went down to Spring Lake to spend some time with my parents. Turns out they were at selling hot dogs, hamburgers etc the Annual “Spring Fling” event. Hung out with them until about 6pm. I’d started to swell long before then.

I’m happy that I’m able to “hang” at these types of events, but at the same time I’m frustrated when my body still turns on me.

Man my legs hurt! I don’t know which is to blame; the Zocor or the fact that I had aqua therapy after a week absence yesterday. And what is the deal with this eye twitching thing? The muscles under my left eye have been twitching off and on most of the morning.

I’m back in the pool today, I missed last week due to the fact I needed to pick up my car from the Kia dealership and it STILL has problems with it. Oh well.

After my workout (still able to climb up the ladder), I found out that Wake Med is changing the dates and times for Independent Class starting May 1st. As the new class times are in the mornings, I’m no longer going to be able to have aqua therapy on Wednesday’s.

Sonia was telling me about another place here in Raleigh where they have a “real” therapy pool AND they take our insurance. I’m going to have to ask her about this and where they’re located and their cost for sessions.

I’ve been playing “phone tag” with Kim (Cheryl’s nurse) most of the day, only to be told that Cheryl is not going to change my script for Zorcor until I have another lab test done first. Get Real! What is the point of testing me now? I’ve already stopped taking the stuff for almost two months now, so any results are going to be false or at best “inconclusive”.

Oh well. I’m going to stop by their office before I go to Rex for my infusion on the 27th.

Had my appointment with Dr. Schecter today. My strength has improved greatly; I’m still able to get off the floor , which is a good thing since I fell when I was out with the dog a few weeks ago. But as I told Dr. Schecter, I’m putting that down to a mis-step over uneven terrain.

I’m still having leg pains and I’ve stopped taking the Zocor (Lipitor substitute), but according to Dr. Schecter, it may take a couple of months before it’s completely out of my system. I emailed Cheryl to see if I can take something else in the meantime. My insurance will cover lovastatin, Crestor, Vytorin and I’m hoping one of these is a generic.

I’m actually fighting with my weight. I’m at a point where I’m not happy about it at all.

Other than the weight issue, things are going okay. Dr. Schecter has reduced my Prednisone intake down to 17.5mgs per day and leaving the IVIG infusions to every 3 weeks.

Alright now, things are getting strange around here. We (the doc’s) all agree that my legs should not hurt the way they do. But no one knows why they are hurting since it’s not the medication(s) I’m taking.

Good news: the numbness and tingling in my toes and feet is gone.

Bad news: my feet and legs are starting to swell again.

Good news: Mister and I went for a long walk today.

Bad news: I fell

Good news: I was able to get up and hobble home.