Friday, June 30, 2006

"I have no idea when I’ll get the test results back, put if I hold true to form, it will be negative. I’m always “stumping the tech’s”.

The saying of “if it’s not one thing it’s another” seems to live in my space these days.

Ok, I didn’t’ stump the tech’s on this one - the damn thing came back positive. This means I’m bleeding out somewhere. Cheryl wants me to have a consultation with someone in the Gastro-Intestine field. I really don’t want to and may have said as much when speaking with her. She of course reminded me that I do have the right to refuse.

Oh Please!

Let’s get real here. With everything I’ve been through in the last twelve months, I’m not about to refuse treatment.

So I’m going to be scheduled for a GI consult and they will probably do the big “C” test. Un huh the Colonoscopy. And here I was thinking I wouldn’t have to deal with this until I was at least 50! At least I’ll be sedated during the procedure. My biggest worry is being a diabetic and not being able to eat the day before.

I’m going to try not to worry about this and enjoy my weekend.

Wednesday, June 28, 2006

I’ve finally finished the “stool test”. I dropped that card off this morning. Yea!!

I’m not much of a red meat eater, but the ONE time when I couldn’t have red meat is when I had cravings for steak, hamburgers etc, and people know how much I LOVE cantaloupe and I couldn’t have that either.

I have no idea when I’ll get the test results back, put if I hold true to form, it will be negative. I’m always “stumping the tech’s”.

On a serious note - things are going much better these days. The leg pains aren't as bad as they used to be. It might have something to do with the fact that I'm holding my own with the Topamax.

Edema has taken another vacation and I'm hoping it's an extended one this time. I can almost wear my regular shoes again.

I'm still having some numbness and tingling, but I'm chalking that up to the drugs.

Wednesday, June 21, 2006

Okay,

I’m seriously trying not to freak out here.

The numbness and tingling is back in my toes, and face.

Since it was determined that the leg pains were not caused by any of the med’s I was taking, Cheryl told me to start re-taking them again. So, I’m praying that the numbness etc is because of some side effect of one of the medications that I’ve started taking again.

I got my second set of test results back. I still have some kind of infection going on, but not as severe as before and I’m still anemic, but not as severe as before on this either. Cheryl wants me to do yet another test, so she asked me to come by and pick up some stool cards. This is going to be interesting. After reading the directions for the test, I know it’s going to be next week before I can even think about doing this.

Saturday, June 10, 2006

Went fishing today, on a pier at Ocean City, MD and a beach in Delaware. It was at the beach that I had another breakthrough.

Walking in sand takes a lot more effort than walking anywhere else; but I was able to do it.

I went to the edge of the shore to take a picture, and as the waves were coming in I automatically backed up on my toes!! Do you hear me people?? It was so automatic that it wasn’t until some time afterwards that I realized what I had done!!

Giving up the praises!!

Thursday, June 08, 2006

I went to aqua therapy today. I’ve been moved up to Level 2 at the pool. Level 2 is actually a water aerobics class. I actually managed to hang with the class AND walk out of the pool without any problems.

I’m somewhat worried, I felt too good when I left the hospital. My legs will probably wait until later tonight or tomorrow morning to hurt from the exercise.

Wednesday, June 07, 2006

Today is my Birthday!!! Yea!! GOD has been good to me for I’ve a lot more to celebrate this year.

I felt so good; I actually managed to walk Mister the whole circle today. I haven’t been able or done this in a long while.

Monday, June 05, 2006

Good news: my leg pains have eased up over the weekend. I don’t know why, but I’m not complaining. I just hope it lasts. I wish I could say the same for this Edma.

My lab results are back – more good news: my A1C’s are still 6.0%! I don’t know how I managed that, because I was sure it would be higher this time, but once again, I’m not complaining.

Bad news: my Cholesterol is above 200, my CBC’s are 16.9 and my Hemoglobin is 9.9. Translation means, I have an infection somewhere and I’m anemic (again). Cheryl is of the opinion that the anemia may be due to the continued Steroid use.

We have no idea why my CBC’s are high or what the infection might be. I wouldn’t be surprised if it’s another UTI (Urinary Tract Infection); between CIDP and the diabetes: I’ve had more than one since last July.

Test / My Results / Range
A1C = 6.0% (< 7%)
Total Cholesterol = 215 (need to do better)LDL Cholesterol = 128 (0 – 130)
HDL Cholesterol = 62 (this is good)Triglycerides = 124 (< 150)
Glucose = 92 (within range)Hemoglobin = 9.9 (on the low side)
CBC’s = 16.9 = (4.0 – 10.50) Too high