Happy Anniversary Mom & Dad!

Back from our Williamsburg trip. I don’t care what type of car we take; I will not do the "back seat" thing again. My legs are too stressed.

If the next trip is over 2 hours by car, I will drive my own car.

Gordon, LaShonda, Mom and I are going to Williamsburg to meet up with Aunt Virge and crew today.

It’s Christmas Day and I’m at my parent’s home with my family.
I’m truly blessed

Dear Santa,

All I want for Christmas is a hot bath*.

*and the strength I need to get out of the tub afterwards.

Went to PT today. Dan used his "strength meter" on my arms and legs. Once again it showed how much stronger I’ve gotten since my last visit. Dan suggested that I start going up and down stairs as part of my exercise reign to strengthen my legs.

I was looking at my calendar and I realized that it’s my anniversary, of sorts.

A year has passed since I first started having the numbness and tingling in my toes and then my feet.

These were the first symptoms of CIDP.

Instead of going to the Dog Park this morning, Mister and I went for a walk instead.

Then we started on raking the leaves in the back yard. Had to give that up, I almost fell over when trying to bag the leaves. Just as well, it’s supposed to rain / sleet tonight.

I went into the house and vented. It’s a week before Christmas and one would think that some of these overgrown children around here would be out trying to make some last minute change for the holidays, after all, games for these Xbox 360’s aren’t’ cheap.

Oh Happy Day!

Went to Aqua Therapy today (and it was COLD outside) and I was able to actually climb up the ladder and out of the pool!! I signed up for 5 more classes.

Cheryl signed my doctor’s note for more PT weight training, but I’m going to wait until after the Christmas holiday before I sign up for those classes.

I woke up this morning without any pain anywhere, so regardless of what happens; today will be a good day.

I took Mister for a walk before I left for work this morning, and when I came home from work, Mister and I walked down to the sub-station. I haven’t walked down there since July. We are slowly getting back into our pre-CIDP routine of walking at least two times a day.

I felt so good when Mister woke me up this morning we went to the Dog Park.

It was a lovely COLD morning. The dogs had a great time. The “parents” compared how many pairs of socks they had on.

Turns out the lower back pain and the aching in my legs is a part of my returning cycle.

I completely misread the signs. It’s no wonder, with everything that’s been going on and all the different med’s I’ve been on; I haven’t seen my cycle since July and to be honest, this is something I haven’t missed.

Life is definitely getting back to normal.

Had my IVIG today and everything stayed where it was supposed to. No IV mishaps when I went to the bathroom. Kaye taped the IV down so well, I could have tried out as an extra in "The Mummy” LOL.

After IVIG, I went to see Cheryl to review my latest pump results. We are happy with the out come.

The only thing I need to do is keep my carbohydrate levels lower than what I am.

I went to see Dr. Schecter today. Good news! Once again I’ve gotten stronger, and dare I say the "R" word - yup, yup remission is the word of the day.

Let the choir say "Amen".

I’ve made a "marked" improvement! Dr. Schecter and Cheryl (I saw her today for a quick minute & I’ll see her again tomorrow) are all so proud of the progress I’ve made in such a short time span.

Once again she has lowered the Prednisone dose by 5mg, so I’m now down to 25mg a day, and the IVIG is changed to once every 3 weeks starting in January 2006.

I want to feel good about the progress I’ve made, but at the same time, I’m kind of scared to; it’s like I don’t want to tempt fate by being too happy. Weird huh?

Okay, I walked out to start the car this morning and I was out of breath. So, no walking Mister this morning.

I was out of breath when I walked from the parking deck to the building as well. This is getting beyond stupid. I hate to say it, but it possible that I may have walking pneumonia. I’m hoping that I just have a bad cold with a serious case of congestion.

Today is a lovely 30-degree day. Just right for Mister to go to the Dog Park, but we won’t be there. I’m going to spend this weekend doing the Mucinex thing. I’ll see Dr. Schecter on Tuesday and I get my next IVIG on Wednesday and I want whatever this is cleared up by then.